Treating neurologists see snapshots of their patients’ lives. But caregivers to those living with spinal muscular atrophy (SMA) see the impact of progressive muscle weakness day in and day out. In this episode, host Diana Castro, MD, speaks with Amy, mother to 16-year-old Mckenna; Kevin, father to 10-year-old Bear; and Soraya, a professional caregiver to 23-year-old Lyza, about the remaining unmet needs in SMA, and their hopes for more.
Treating neurologists see snapshots of their patients’ lives. But caregivers to those living with spinal muscular atrophy (SMA) see the impact of progressive muscle weakness day in and day out. In this episode, host Diana Castro, MD, speaks with Amy, mother to 16-year-old Mckenna; Kevin, father to 10-year-old Bear; and Soraya, a professional caregiver to 23-year-old Lyza, about the remaining unmet needs in SMA, and their hopes for more.